Use our global calendar of privacy events to locate an event near you.
About the Workshop:
Fifteen years ago, the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule came into effect for covered entities. Over the past 15 years, the only major change to the HIPAA Privacy Rule occurred in 2013 when HHS issued the Omnibus Final Rule, which made the HIPAA Privacy Rule directly applicable to business associates. However, the Omnibus Final Rule did not address what many critics view as barriers to sharing data, which may hinder efforts to encourage providers to adopt electronic health technology, and did not address gaps that are a result of recent technological advances.
Recently, HHS published a request for information (RFI), “HIPAA Privacy: Request for Information on Changes to Support, and Remove Barriers to, Coordinated Care.” The RFI seeks to solicit the public’s views on how the HIPAA Rules should be updated to mitigate potential barriers that limit or discourage coordinated care and case management among hospitals, physicians, payors, and patients, or otherwise impose regulatory burdens that may impede the transformation to value-based health care without providing commensurate privacy or security protections for PHI. Under HIPAA, HHS has the authority to modify the privacy standards as the Secretary deems appropriate.
In light of these gaps and the RFI, FPF, Duke in DC, and Intel are bringing together relevant stakeholders to discuss what changes to the HIPAA Privacy Rule could and should look like.
- Maya Bernstein, Privacy Advocate & Senior Advisor, HHS
- Stan Crosley, Senior Strategist, Information Accountability Foundation
- Kim Gray, Chief Privacy Officer, IQVIA
- David Hoffman, Associate General Counsel & Global Privacy Officer, Intel
- Kirk Nahra, Partner, Wiley Rein
- Jules Polonetsky, CEO, Future of Privacy Forum
- Arti Rai, Elvin R. Latty Professor of Law, Duke Law School
- Morgan Reed, President, ACT – The App Association
- Mario Romao, Global Director of Health and Data Policy, Intel
- Paul Westfall, Washington Counsel, American Medical Association
- Marcy Wilder, Partner, Hogan Lovells
The FPF Privacy Book Club provides members with the opportunity to read a wide range of books — privacy, data, ethics, academic works, and other important data relevant issues — and have an open discussion of the selected literature.
We are excited to share The Known Citizen: A History of Privacy in Modern America by Professor Sarah E. Igo was chosen as the popular favorite by our readers. We are thrilled Professor Igo will be joining us for the December book club to introduce her book and answer questions.
Please join us on Wednesday, December 5, at 2:00 pm (EST) for the next FPF Privacy Book Club. If you are an existing member of the Book Club, you will receive the virtual conference dial-in information near the discussion date. You can join the Book Club here. Please feel free to forward this sign up link to friends who also may be interested.
This Privacy, Interoperability, and Security Convening is co-hosted by Project Unicorn, InnovateEDU, and the Future of Privacy Forum. It will bring together experts from different organizations and communities to explore how privacy and interoperability in education can work together and mutually support each other while acknowledging the tensions that exist between the two.
The adoption of artificial intelligence in the financial service industry, particularly the adoption of machine learning, presents challenges and opportunities. Challenges include algorithmic fairness, explainability, privacy, and requirements of a very high degree of accuracy. For example, there are ethical and regulatory needs to prove that models used for activities such as credit decisioning and lending are fair and unbiased, or that machine reliance doesn’t cause humans to miss critical pieces of data. For some use cases, the operating standards require nothing short of perfect accuracy.
Privacy issues around collection and use of consumer and proprietary data require high levels of scrutiny. Many machine learning models are deemed unusable if they are not supported by appropriate levels of explainability. Some challenges like entity resolution are exacerbated because of scale, highly nuanced data points and missing information. On top of these fundamental requirements, the financial industry is ripe with adversaries who purport fraud and other types of risks.
The aim of this workshop is to bring together researchers and practitioners to discuss challenges for AI in financial services, and the opportunities such challenges represent to the community. The workshop will consist of a series of sessions, including invited talks, panel discussions and short paper presentations, which will showcase ongoing research and novel algorithms.
The Future of Privacy Forum (FPF) and DataGuidance have released a new Comparison Guide on the GDPR vs. CCPA, which provides an in-depth analysis on the EU General Data Protection Regulation (GDPR) and the California Consumer Privacy Act of 2018 (CCPA). The Guide highlights the degree of similarity of the GDPR and CCPA on the five key provisions, and a detailed analysis of the similarities and differences.
Please join the Webinar on Thursday, December, 13, 2018, 10:00 AM (EST), and meet the experts from FPF and DataGuidance who will provide an overview of the Guide’s key findings on the similarities and variances between the two laws.
- Gabriela Zanfir-Fortuna, Policy Counsel, Future of Privacy Forum
- Stacey Gray, Policy Counsel, Future of Privacy Forum
- David Longford, CEO, DataGuidance
- Alexis Kateifides, Global Privacy Director, DataGuidance
Energy Data Privacy: How Climate Changes Everything
Energy data used to be boring. The utility read your meter 12 times a
year, and no one cared much about seeing your utility bill history.
Nowadays, things are very different. As the $10+ trillion energy
transition to renewables ramps up to fight climate change, private
energy data access is a critical requirement to deploy and manage
distributed energy resources like solar, battery storage, electric
vehicles, demand response, and energy efficiency.
Also, to make things harder, smart meters are second only to smart
phones in how much they know about your day-to-day life. They know
when you’re home, when you’re at work, when you’re sleeping, when
you’re watching TV, when you’re taking a shower, when you’re having
sex. So how do we make the switch to a carbon-free future without
compromising energy data privacy? What will the future of energy data
privacy look like?
Daniel Roesler is the co-founder and CEO of UtilityAPI, a utility data
service that automates interactions with utilities. UtilityAPI is an
early adopter of the U.S. Department of Energy DataGuard Voluntary
Code of Conduct, which outlines best practices for handling private
energy data. Daniel is on the board of the Green Button Alliance,
which manages the international standard around personal utility data
access, and is technical contributor to the Customer Data Access
Committee at the California Public Utilities Commission, which comes
up with the next generation of regulations around utility data access
in California. In his spare time, Daniel maintains several open source
privacy and security projects.
You are encouraged to read this relevant article on the legal status of smart meters before Daniel’s talk: https://na01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.lawfareblog.com%2Fpublic-utilitys-recording-home-energy-consumption-every-15-minutes-search-seventh-circuit-rules&data=02%7C01%7Ckweingarten%40ebay.com%7Cf3d27c6c8df14af2a8f008d61ac7d1b8%7C46326bff992841a0baca17c16c94ea99%7C0%7C0%7C636725842980890490&sdata=uVYL0j1Oc%2Bu6%2Bs2QSJBVTL1HR6Arh8%2BEjUxtS8AiSnE%3D&reserved=0
This webinar will review the results of a comprehensive study of privacy and compliance risk management best practices across companies of all sizes from a broad range of industries and geographies.
TrustArcWebinar FAQs: Click here for answers to the most commonly asked webinar related questions.
Data for Black Lives is a network of over 4,000
activists, organizers, scientists, and researchers
who are using data and technology to create
concrete and measurable change in the lives
of Black people. In November, 2017 we hosted
our inaugural conference at the MIT Media
Lab, convening over 400 people from all over
the country to examine the role that data and
technology have historically played in Black
communities and to chart out a bold blueprint
for the future.